Another year gone by...

I can hardly believe it is New Year's Eve 2009. Where has time gone? This has been a long and somewhat difficult year for Mimi. Last January, she had open heart surgery because of two valves; one needing repair and one needing replacement. She healed well from that and was able to get back into her normal routine of helping others and scrapbooking and quilting and, well being busy.

As we got busy getting ready for two of her grandchildren's open houses and graduation, she started having symptoms that once prodded by Angie (my youngest stepsister), she finally agreed to see a doctor. June 7, 2009 was a day we won't forget. The neurosurgeon explained that she had a brain tumor; a gleoblastoma multiforme. The worst of all brain tumors. She wayed her options after talking with family and decided to have surgery to remove what they could. After surgery and a long recovery, she started radiation and chemotherapy medications. She had a bout of Stevens-Johnsons Syndrome which is a skin reaction to the Dilantin she was on along with the radiation she was receiving. That took quite a while to heal and was very painful and very uncomfortable for her.

Mimi just kept going; she kept trying each day to get up and around and do what she could for herself. She did quite well and even got so she could get herself showered without any help.

As you may know, Thanksgiving she and papa and JJ came to our house for dinner. She had done fine and went home and that is when things came to a head. She had a seizure that night and several more in the ambulance. Up until this point she had not had any seizures.

This cancer is awful; well any cancer is but this one just takes over so quickly and steals ones' physical life. But I must say that Mimi's spirit is strong and deep down I know she has not given up on life. She knows she has a future in God's kingdom and I am grateful she has a strong faith.

Thank you to everyone who has prayed for her healing. That is what we all want for her, however, God must have other plans for her.

She is still with us and I know that everything is in God's timing so I patiently wait for Him to call her home.

Papa has been by her side almost 24 hours a day since Sunday when JJ went to Florida. He is going to need your prayers of healing and comfort now more than ever. I know that they are good for one another and they will get each other through with God's help and our prayers.

Blessings to all and I am believing that 2010 will be a good year.

Papa by her side

The last two nights papa has stayed with mimi. He slept well, as well as he could, and she did too. It's good for him to be here because with JJ in Florida, the house is pretty quiet and no doubt lonely.

I know this is hard on each of us in a different way; it's likely the hardest on him since they have been together since 1977 (I believe) when they first met and dated. Papa has been such an inspiration to me all throughout my life and I am grateful that God allowed he and his girls into our lives.

Mom is resting quietly again today and doesn't seem in pain. That is good and she needs the rest. It also helps us to deal with our loss knowing she is not in pain and resting peacefully.

Thank you for your prayers and support. God bless each of you.

Sunday morning

Mimi is still sleeping after finally settling down early this morning. Angie and I spent the night and slept in the recliner chairs next to Mimi's bed, one on each side. We took turns looking and listening to mom and resting in between.

The blessing this has created is getting closer with my sister Angie. She and I are closer in age than the others and so we have a bond. Besides the fact that we shared a room growing up at our parents house, we have always gotten along.

Ours is a unique family in that two families united, even in the midst of teenage years, and created a beautiful couple with 5 children. Both our parents have been through some tough times and their meeting was a God-send.

Blessings to all and enjoy your family today and always....

Peaceful

Mimi was able to calm down and started resting around 1am. She is still sleeping peacefully now and that is good. She is at peace with herself and she knows what lies ahead. She is not afraid to face death. A few months ago she told me she wanted me to read this book called '90 minutes in Heaven' by Don Piper. She told me she felt like she could have written this book because what the author told about his vision of heaven is exactly what she had imagined it would be.

I do not want to lose her but I know that she will be in a beautiful and peaceful place; no worries, no stress, no tears and no pain-physical or emotional. That sounds wonderful to me.

I pray that when my time comes I can be as at peace as Mimi is. God bless her and take care of her because she is awesome. I hope he realizes that when she arrives, if any organization needs done, she will take over! She will make sure all the children are taken care of and all the Sunday School classrooms are organized and supplied.

Christmas Day was December 25th and now we await Epiphany when the Wise men arrived to see the Christchild in Bethlehem.

Peace be with each of us this holiday season....

Love one another

As I lay with mom tonight in her bed at the Hospice Home, I remember many nights her lying with me. It could have been when I was sick or had a bad dream so staying with her now seems minimal compared to all the times she took care of me. How could I ever deny that even though I have to say it is very difficult to see her confused or crying. Her emotions are jumbled because of the medications and the tumor. This kind of cancer effects so many parts of the body; from emotional to sharing a thought to short-term memory. One blessing I have found is that she shares many long ago memories such as her childhood or ours. Another blessing is that I believe this turmoil has made our family ties stronger; realizing that life is so short, we must lean on one another and not be afraid to ask for help.

I've said this before but I could not ask for a better mother. She has been there for me and my family through thick and thin, good and bad, happy and sad.

Thank you all for your thoughts and prayers. I cannot tell you enough how much your support means. I do not know what people who do not have their faith and their family to give them strength do. I guess they do without and that is sad.

God bless and Merry CHRISTmas to all, and may you sleep well tonight.....

Merry CHRISTmas to all...

Merry CHRISTmas to all our family and friends!

Today when Papa and I arrived, Mimi was sleeping quietly. She had kind of a rough night in that she wanted to get herself out to bed. She keeps telling us she needs to 'get to Kohl's' and tries to put her legs out of the bed to get up. She was probably thinking she needed to get her shopping done like she always had in the past along with wrapping until midnight. Either way, Papa made sure JJ had a nice Christmas.

Continued prayers are appreciated as we continue this journey we are all on. Thank you all for your support, love and generosity. We do notice even the little things.

Thank you to all who have visited Mimi. Blessings to all.

Christmas Eve

It's Christmas Eve and Mimi is resting quietly. She had a few visitors today. Papa as usual and I came here after work and a little shopping. Tami, Debi and Staci came today (brother Bill's girls). It means a lot to have so many visitors stopping in especially this busy holiday season. Jim and Nancy came by this afternoon too. Funny thing is, Mom said that Jim looked like a preacher today "with all that white hair".

I believe in my heart that mom knows everyone and that is a blessing especially since it's hard to see her not able to do for herself like she used to.

God bless each of you and your families. As you celebrate this wonderful Christmas season, hug your family and keep each of them close. We never know when our lives will suddenly change and not have them as near as we would like.

Blessings and prayer does work!

Restful night...

Barb Moore, mom's childhood friend, came to stay with her last night and I just got a call from her. Mom rested quite a lot and peacefully according to Barb. Thank you Barb for taking care of mom and for being such an awesome friend. Barb lives in Florida and is here in Michigan visiting her children and grandchildren and took time out of her schedule to come see and stay with mom.

We never know when we will need true friends like that so I say to myself, treat others as you yourself would want to be treated. I believe there is a bible quote that says "Love thy neighbor as thyself".

Thank you to everyone for their support and love....we sure to appreciate it. Merry CHRISTmas to all!

Visitors.....

This past weekend Mimi had several friends and family visit. I know how hard it is for people to see someone you love not presenting themselves as they normally would. When someone who always was willing to share a cup of coffee or go to lunch, now mixes their words up....it hurts. Please remember how much mom has been a wonderful part of your lives. How many times you saw her helping out at church or in the grocery store always willing to stop and chat with a smile. She is still the same person spiritually and emotionally; her flesh has been changed. God knows her heart as He knows each of our hearts. If you feel you need to see her, that is okay. If you have difficulty and find it too hard to visit, that is okay too.

Thank you to everyone for prayers and cards....we appreciate all that has been done for our family in support. God be with each of you this holiday season.

Keep your focus on time you can spend with loved ones; the time goes way too fast.

School friends from long ago....

Mom's friend Barb Moore is here from Florida and came by to see her tonight! What a wonderful surprise for mom as she and Barb have known each other what seems forever! Mom use to babysit for Barb's daughter Patty and absolutely loved her! She even told me she would cry when Barb would come get her because she wanted to keep her!

It is always good to have friends from our childhood that we keep in touch with. I believe mom would say to stay in touch with those friends and someday when you least expect it you may need their support or just a hand to hold. Thanks Barb!

Darlene Hammond, another of mom's childhood buddies, is coming to stay with her tonight. I know that mom will appreciate her coming and staying with her. For safety reasons, we are having someone stay with her each evening and throughout the night.

Thank you to everyone; family and friends, who have provided the wonderful support for our family to work through this life event....although I realize it has been a challenge, I know it will make us stronger. God bless everyone!

CHRISTmas week...

Well when I arrived today, Mimi is up with Papa reading over her CHRISTmas cards. She just finished her lunch (ate about 1/3) and is going to be getting cleaned up soon. Papa told them that would be good since she will likely have lots of company today. (Today is the Dilworth CHRISTmas and plans are, I believe, to come over in shifts to visit her).

Mimi looks rested today. I spoke with the nurse early this morning and she said that she did better last night as far as resting and comfort is concerned. Prayers for comfort are most appreciated at this time.

As we approach CHRISTmas day, I know Mimi would want you all to enjoy your families, treasure the noise and the messes made, eat those treats and feel blessed that you have one another.

Blessings to all of you and updates will be made as much as possible....thanks to everyone for your support and love!

Resting still...

I came to visit Mimi and decided I was going to stay the night. Mimi was a little aggitated throughout the evening but finally about 1:30am, she fell asleep and is still sleeping! Wow! So glad she is finally resting peacefully......thank you God for that.

Thank you all for your thoughts and prayers for Mimi.

Resting and watching turkeys...

Mimi had a few visitors before I arrived today. Diane Brown had been here and of course Chuck. Aunt Gloria and Uncle Steve are here from Arizona and they were visiting with Mimi when some turkeys came out....of course they had to take some pictures so they could send to their daughter Stephanie in Arizona. Mom seems pretty good; a little tired.

We appreciate your continued thoughts and prayers. Mom needs prayers for rest and comfort. It is also hard to see her so confused although we are so very grateful she recognizes each of us. That is truly a blessing!

Take care and will update you again tomorrow.

Weekend activities

Yesterday we held our annual Tilden cookie decorating....Mimi always had lots of frosting, candies and different cookie shapes to decorate growing up and even in our later years (like last year!) It was quite an event! Jeff, Angie, JJ, Carissa, Danny, Danielle, John (Danielle's friend), Papa and myself were here for the event. We brought all the fixings and the cookies to decorate. We even had some crackers and cheese to munch on while we celebrated.

Mom has had lots of visitors and it seems to do her some good. If you would like to visit, please feel free. She looks good and is well taken care of here at the Hospice Home. The home is located on Kingsbrooke Drive which is just across from Vista Grande Villa off Springport Road near airport Meijer/down the road from Baker College in Jackson.

Lots of friends and family have come by and made Christmas cards, helped decorate her tree and visit with her. Thank you all for your support, love, thoughts and prayers. We do appreciate the love you show us through caring about Mimi.

Hoping you are all understanding the true meaning of Christmas; not just about gifts or cards but of giving of yourself to those who need it most. And most of all, sharing with your family the love of the Christ child whose birth is soon upon us.

Prayers and blessings to all!

Pray for rest...

Please pray that Mimi could rest more at night and be awake more during the day....perhaps she has them mixed up. The nurses are trying to get her acclimated to a schedule, but perhaps Mimi has too much on her mind to sleep at night!

Aunt Gloria and Uncle Steve (Rainey) from Tucson, AZ are here and will visit Mimi today. Also, Aunt Joyce (Drake) had her 80th birthday yesterday! Happy Birthday Aunt Joyce! She does not look 80....and she doesn't act it either. I mean that in a good way!

Friends Leo and Sandy are here from Florida for a visit and will likely be seeing Mimi today also. She will definitely be tired tonight.

Thanks again for your prayers.

Christmastime visitors...

Today Mimi had a couple visitors when I was here; besides her usual Papa. Her friend Diane Brown was here and then Uncle Mike Horning came by to visit. Diane brought her an ornament for her Christmas Tree....thanks Diane!

Apparently Mimi had a long night and didn't sleep much so she was sleepy when we were here. Papa gave both of them a tour of the Hospice Home facility which is beautiful by the way.

More updates as we have them....keep her in your prayers please. Thank you and God bless!

Getting settled...

Well, Mimi is all moved in and trying to settle in with her new surroundings. Yesterday, several of us met at her room to put up and decorate a Christmas Tree for her. The tree is a tabletop but is just perfect for her room. She enjoyed seeing everyone and although we were noisy, I believe it did her heart good to hear the sounds and see the children putting the ornaments on the tree one-by-one.

Shari went back home to Florida today. Angie is here until Thursday. Aunt Gloria and Uncle Steve (Chuck's sister & brother-in-law) will be flying in on Wednesday for a week. It will be nice to see them. Sister Connie (Bristow) will be here on the 16th. It has been good for Chuck to have the support from them all.

Thank you for your continued thoughts and prayers. Will try to keep everyone updated as much as I can. I went back to work today and thankfully I am able to work part-time for now.

Thanks again! Blessings to one and all this holiday season.

Moving to Hospice Home today...

Mimi is being moved to the Hospice Home this morning at 10am. She seems to have had a restful night after a very long day of being up and talking about many things. Thank you for your continued prayers for her comfort. We believe this is the best move for her at this point. She will have 24-hour care and will be kept comfortable.

God bless you all....

Prayer for Mimi

I ask dear Lord, for peace and grace,
To fall upon moms' soul and face.

Your love and comfort, may it come now
I pray that she can rest somehow.

I know you care and understand,
So please lead her with open hand.

She needs you now, more than ever before,
She loves you so, your life she adores.

If now is her time to be with you,
Then let it be, and see her through.

She has endured so much pain,
I ask for your mercy, again and again.

God be with my mom and keep her comfortable and at peace until she reaches those pearly gates of heaven.

Love, Tina

Watching and waiting

Mimi is resting generally comfortably. Sister Shari came here from Florida early Wednesday morning. Mimi knows her and was glad to see her. Mimi has been communicating with us about her wishes and people she wanted to see. Yesterday she asked for Darlene and Berta, her grade school buddies, and they came up to see her. Uncle Mike, mom's brother in law, came to see her too. Her brother Jim came by quite a few times to see her and she is always glad to see him.

It is always tough to see her knowing what is happening to her physical body but we all know that her spirit is strong and she is not afraid of what will happen to her body. She is at peace with God and knows that sometime soon she will be with other family members in heaven.

Thank you for your continued thoughts and prayers for her comfort and peace. I believe if she stays comfortable over the next day, she will be moved over to the Hospice House in Jackson, MI.

Blessings to all and remember to hug your family members every chance you get. Love to all, Tina for Ruthann's family

Letting go....

It has been a long journey since June; knowing Mimi has a brain tumor, seeing her go through surgery after having had heart surgery in January it was scary. The radiation and chemotherapy treatments have been challenging in many ways; physically and emotionally for her and for her family.

Thank you all for your support; whether you've taken time to think about her, prayed a special prayer for her, sent one card or many, brought over meals, called to check on how everyone is doing....it has all been appreciated. I don't think anyone can know just how much it means to have friends and family until the time comes when you feel helpless and someone comes along with just the right thing to say or do to help you make it through another day.

God bless each of you and I will keep you posted here. She has rested most of the day although she has been awake a few times to visit with some of her family members. She doesn't seem to be in pain but when she gets fidgety or agitated, she is able to receive a medication that calms her and helps her to rest. That is what she needs to do; rest and be comfortable.

We asked for no visitors because she needs her rest. Mimi would say to you, remember her when you saw her at church or at scrap-booking or watching JJ play football or at a family gathering. She would want you to keep that image in your mind and know that she loves each of you.

I could not ask for a better mom in the world and she has loved each of her family so very much. Family and togetherness is so important to her. If she were writing this, I believe she would say; spend as much time with your family as possible...we never know when such a challenging event can occur. Love your friends and have faith in God that He will watch over you.

Goodnight for now and I will post something in the morning......love, Tina for Mimi's family

Hospice care

In the best interest for Mimi, she will be under inpatient Hospice care right here at Allegiance Hospital. When/if her comfort is controlled, she may be moved to the Hospice Home in Jackson. Daughter Angie came down from Grand Rapids last night and she stayed with her. Mom had another rough night and finally today, per our request, she was given Dilaudid; a pain reliever similar to Morphine. She received that at 11am and has been sleeping comfortably since. Thank you all for your calls, cards and prayers; please continue to pray for her to be comfortable and we know she is at peace with her belief. Pray for strength for her family as they see this process continue and yet realize that she did/does not want any heroic measures. Thanks again and I will try to keep you updated. (Was unable to use computer yesterday)

Love, Ruthann's family

Pray for peace...

Mimi has had a rough time in the hospital. Please no visitors; she would not want you to see her this way. The doctor called both dad and I early this morning (4AM) to come in as she is so agitated and could not rest. Thankfully, this morning about an hour ago she began to rest. The problem is the medicine they use to relieve her agitation almost had an opposite effect on her. She needs to rest so she can be comfortable. Our prayer is that God will keep her at peace and comfortable. Pray for our family to accept what is happening and to do what is best for her. We certainly want to follow her wishes of being comfortable until the time comes.

It is with a broken heart that I see her this way but with this aggressive brain tumor it is part of the process. The tumor has grown according to the most recent MRI (yesterday). The swelling has increased and that causes the agitation and her being so uncomfortable. Thank you all for your prayers, cards and love sent through God our Father. He is in charge and I know He knows when it is time and will keep her close to His side.

Please pass along the information and again, visitors are very much discouraged. If you can help out with JJ, please call me or Papa anytime. We love you all for your continued support of our family.

Blessings and peace to all...

Sorry for delay...no internet

Sorry about the delay in updating Mimi's blog. We moved to Clark Lake early November and we don't have Internet access....so I am updating you on the computer at Allegiance Hospital.

Mimi actually had a great week so far and went shopping Wednesday. Thursday, we had Thanksgiving at our new place. Papa brought over the fixings early in the day and then Mimi, Papa and JJ came over for dinner.

After eating, the guys watched a little football, they went home. Papa said Mimi did fine, got herself in to the house when the arrived home and then they watched some TV. Around 10:30pm, Mimi was heading to the kitchen and instead was unsteady on her feet. Papa got her into the kitchen for her night meds and then she went to get ready for bed. She could not get herself off the stool and her left side was shaky and weak. Once Papa got her into bed, he called me--I left immediately--and he called 911. When I arrived the ambulance was there.

Mimi apparently had a few petitMal seizures and a grand Mal seizure on the way via ambulance. In the ER, they did a CAT Scan and a Carotid Ultrasound. No word yet but she is admitted now.

Papa and I are waiting in the Family Waiting Area on the Cancer floor.

Pray requests: Comfort for mimi; strength for papa; and peace for JJ.


I keep thinking to myself: Life is a rough road but I must remember who owns the car and who is driving....God himself and He is on the Throne!

Great weekend!

Chemo meds starting again...

Well Mimi called me to say that her blood counts were where the oncologist wanted them and she is to start back on the chemo meds again; 4 days a week. She returns to see them again in a month so as I hear information, I will share it.

The girls and I will be staying with Mimi this weekend as JJ and Papa are invited to go up to the Great Wolf Lodge with all the family and their kids. Should be fun for them.

Keep the prayers coming! And thanks!

MRI Results are good!

Mimi, Papa and I went to see the Oncologist yesterday for her MRI results and.....there has been no grown in the tumor! Yeah! Her blood counts were not exactly where they want them yet so she has a re-check next Wednesday and if everything is okay, she will start the Tamodar (chemo) medication again. I will keep you updated as I hear.

Thank you for your continued prayers for Mimi. She is doing what she can each day to keep herself busy and even though she seems to have a cold right now, she is working hard at keeping her spirits up.

Love to all and thanks again!

A wonderful start to the week

Mimi was at church again today and that makes this week start off great! See you soon!

Busy Saturday...

Mimi had a visitor this morning all the way from Sun City, Florida! Barb Griggs-Moore, a long-time friend, who was in Michigan visiting her children. She stopped by for about an hour and visited with mom. She brought over some sweets and JJ liked that!

At 12:30pm, JJ had his fourth flag football game in Onsted. Well even though it rained and was breezy, they pulled out a win (they are 4-0!).

Tina took Mimi to get some jeans and run some other errands after that. Whew....she is tired out and glad to be home for supper. Papa is making fish! Yum yum!

Well she had a great day and now she is ready for some good rest so she can go to church in the morning.

Thanks for all your continued prayers and the lovely cards that are still coming in. We appreciate all your support.

Oh and thanks to everyone who has been bringing food over for suppers! It is most appreciated!?!

Going to church

Last Sunday was extra special for us....being in 3rd grade now, JJ got his own Bible AND Mimi was able to make it to church! That made it even more special.

Today Mimi came to church again. That is quite a task since she has worked hard to get better. Even though she still struggles with her eyesite, she came and worshiped and it was wonderful to see her there! So many people have prayed and continue to pray and that is much appreciated! Thank you all!

Yesterday I finished book 3 of her cards and made a special small scrapbook of pictures for JJ of he and his dad. It was a bittersweet task for a couple reasons. One, I went to the scrapbooking event that Mimi was suppose to go to but because she wasn't up to it, I went in her place. Second, the book I created brought Jeff to mind a lot. I remember so many wonderful things about him and I know the little book I made will help JJ recall the times he shared with his dad too.

God is good and I am so grateful for many things in life but at this time especially I am grateful for my mom and all that she has done for me and given me and shared with me. I appreciate every moment even small ones that I can share with her.

Please keep praying for mom, dad and JJ. God has blessed us all with the opportunity to pray for those in need. Thank you all!

Update from Mimi

Well I talked with Mimi last night and I hoped for something more positive but here is the update. Mimi started back on the Chemo medication and the steroids. She has been having headaches again, feeling more tired than usual, and just not feeling like herself. Her MRI has been moved up to October 5th where they will look to see if there are any changes in the tumor.

Please continue to pray for Mimi, Nuna and JJ as they have a lot to deal with on a daily basis. Prayers are appreciated and so are the cards. Family and friends have been bringing food over and that has been a blessing since Nuna has a lot of responsibility. He doesn't like to ask for help either so if you want to do something, please feel free.

I am glad Mimi doesn't have to go to radiation but I miss having lunch with her on Fridays. I think I will have to just meet her for lunch anyways when she is up to it!

Pray that Mimi feels up to attending the scrapbooking event this Saturday with her friend Sandy (who signed her up! what an awesome friend!) It would be so good for her to get out of the house and be with such a group of ladies who will no doubt be glad to see her. God is good and I do believe in miracles and so I am asking that we all pray for just that; a miracle for Mimi to be healed. Thank you all. We love you all for your continued support of our family!

Additions to the Dilworth family

Mimi wanted to share congratulations to our new family additions! Robbie & Shannon had a little boy Zachary Blain and Dan & Jessica had a little girl Abigail Anne. We are all excited for the families and look forward to seeing both of these little ones! Blessings to all!

Radiation is OVER and moving forward with LIFE!

Mimi finished her last radiation treatment on Tuesday, September 8th! Yeah! She was so relieved to be done and is ready to get on with her life. She will start back up with the chemotherapy drugs next week and will take them Monday through Friday. She met with the Oncologist Wednesday, September 9th (9-9-09) and they told her her 'blood counts' were good. She has another check in two weeks for the blood count and then will have another MRI in November (may have already said that).

She is excited because today, September 10th, she is going to the Look Good, Feel Better class. This class will help her with applying makeup, hairstyle (with her new wig) and other things she can do to 'feel better'. Thankfully the cards keep coming in and I believe in the last 70+ days she has received at least one card everyday except one....that was probably my day!

Blessings to all who have been praying! Keep them coming! Love you all!

Down for the count

Tomorrow is mimi's last treatment! YEAH! Thank you all for your prayers and cards and please know she loves them all and appreciates every single one. Keep the prayers coming and the cards are welcome too. Thanks again!

Counting down the days...

Today I realized mom has only 6 more treatments! Yeah! She has completed 24 treatments and is still going! I am so proud of her and her ability to keep going when the going gets tough! Our goal for the morning is to go get manicures and pedicures....won't that feel good. With the nasty, rainy weather we need to come up with some positive things to say and read so.......smile it's Friday and we are all alive and God loves you! More later! Keep the cards coming~I am filling up book #3.

First outing!?!

Thursday, 8-27-08, Mimi and Papa went to meet with the 'Lunch Bunch' for their monthly gathering. This was officially moms first 'outing' since her brain surgery. The lunch bunch are all relatives of moms (Daglow side cousins) and they meet monthly for lunch at the Country Buffet. I've been myself and it is a lot of fun especially if Rita is there because you are sure to laugh. Speaking of Rita, she picked mom up after her radiation treatment and took her shopping to help her get JJ's school clothes. Rita is one of moms close cousins who if you've ever met her you might think she and mom were twins or something. They look a lot alike. Mom says she definitely didn't need someone to rock her to sleep last night because she was worn out. She truly enjoyed seeing everyone and just 'getting out' for something fun.

Over half way through...

Yesterday was a productive and busy day for Mimi. She finished day #19 of her treatments which means she is over half way through this treatment regimen. She is feeling pretty good although she tires easily. She has had family and friends visiting this week which helps to keep her spirits up. Again, the cards are a wonderful way to keep her going and just knowing that people love and care for her is a Godsend. There is a place in Jackson called "Talk of the Town" and it is a beauty salon that raises funds to provide wigs for people with cancer. Well, we went there yesterday and she found one to wear. Although nothing really replaces your own hairstyle or color, she was pleased with what she received. What a blessing! The wig was no cost to her and that is a neat way to pass on to people who need a little something for comfort when they have lost their hair. So, when you see her next she may be a little blonder than usual but the hairstyle is cute on her. More later as we have updates! Thanks for your prayers...

Answered prayers

Well Friday 8-14-09 was day #14 of Mimi's treatments! Yeah! Half way through this treatment regimen. Danielle spent the night Thursday night 8-13-09 because Chuck had plans to attend the Annual Dewey Lake Fishing Tournament, starting early Friday morning. Although he didn't win the biggest fish (he was tied for first mid-day) he had fun just being a guy, fishing and well, relaxing. Danielle stayed with Mimi and JJ Friday morning and after I got out of work, I picked them up and brought them over to the house as Mimi had her treatment that afternoon. She had shared with me her goal that day was to have me find her some silk head scarves that she could wear to protect her head when she had to go out. Wearing them also makes her a little more comfortable. So as we set out for Jackson, we stopped by a few garage sales but no luck. Tried a consignment shop in Brooklyn but the only ones they had were Coach name brand and were new so we couldn't see spending that kind of money. Well, we went through Michigan Center and a consignment shop there had three of them! Her favorite one was only $1! Then when I saw the American Cancer Society building we pulled in. I went in to talk with them about what exactly they do there. They were very nice and I signed up Mimi for some support literature and then when I told the gal about the scarf search she said 'here are three (free) ones' that someone donated yesterday. So, mom now has 7 scarves (including the one Aunt Joyce lent her). Mom was so happy she said 'God really answered my prayers didn't he?' After her treatment we went for coney dogs at Jackson Coney Island and then headed home to rest. The day was a success and mom is doing well.....attitude and all. Thank you all for your support! Love, Tina

Mimi had a GREAT DAY!!!

Well Mimi left me a message telling me that her appointment with the oncologist went very well. They were quite pleased with her progress. She had improved so much they asked her to go over the Radiation center and have them take a look. She arrived at the Radiation center, the doctor checked her over and......they asked her if she was ready to get started again with her radiation RIGHT THEN! Of course she said yes because she told me she 'wants to get on with her treatment so she can get on with her life' . YEAH! They did her treatment and although she was tuckered out, she was very glad to have another treatment behind her. So treatment #12 is down....this is very good news. She also will start her Chemotherapy medications tonight. Prayers are still needed and we are ever grateful for the wonderful support this community, our church and our family have given her and her family. God is good ALL THE TIME and thankfully He is still on the throne! More news as it occurs. Love to all!

What's happening with Mimi...?

Mimi will have her one week re-check with the oncology doctors tomorrow. She is hoping to get some answers specifically about her eyesight which seems to continue to fade. She also will find out when the chemo/radiation therapy will resume.

Mimi had her niece Debi (Pitock) come over and shave what was left of her hair off. She says she looks like 'GI Jane'. She looks great and feels good too.

She has had quite a few visitors lately and I feel that has really perked up her spirits...she has a much better attitude....so I guess she, like most of us, needs an occasional 'attitude adjustment'!!

Thanks again for all the cards and food and well especially the prayers. They are working and keep her and her family going when things get tough.

More updates after the appointment.....love to all.

Brain Cancer Awareness Ribbon....

Prayers for the Daglow family

I need to mention that Chuck couldn't be at the appointment today because Mimi's cousin Harold Daglow passed away and his funeral was today. Please keep them in your prayers.

Chuck was a pallbearer. He was there in spirit and he sent Angie with a list of questions to ask the doctor. They say raising a child takes a village...well I think it also takes a village to care for an ailing parent.

Recheck with Oncology

Mimi, Angie and Tina met at Allegiance to see Dr. Axelson today at 11:30am. After the normal check in procedure (weight, blood pressure, blood draw) we were escorted to the room to wait. We got right in and the wait to see Dr. Trimble wasn't too long. Dr. Trimble looked mimi over and was pleased with her progress as far as the skin reaction. It is believed that yes this rash/reaction was from the Dilantin and not the chemotherapy medication. It is possible that the Dilantin and the radiation therapy could cause this same issue but it is not positive. Every case is different. Mimi is only 1 of 2 people that this particular doctor has seen have SJS (Stephens-Johnson Syndrome) in 15 years of practice. Well, mimi is unique isn't she? We will meet with oncology next Wednesday again and see where her treatment plan will go from at that point. No radiation or chemotherapy drugs yet. Also, and obviously, she is no longer on the Dilantin.....

Mimi's outlook is better today and she looks even better today than last night (rash). She always is beautiful to me!

I read something today and shared it with mimi. I told her I was going to put in on this blog so here goes.....

P E R S E V E R E N C E....whether you are two steps behind or a mile ahead, you are still in the game.

Well, thank you all for your thoughts, prayers and cards! Mimi is feeling the healing through your prayers and is enjoying your cards over and over.

Sympathy haircut

It's Tina again....I forgot to mention that I had decided once Mimi started losing her hair, I was going to get my hair cut off....short! So, I did it. I had Carissa use the hairclippers and she shaved my hair to about 1/2 inch long. I did this to show support for Mimi. She calls it my 'sympathy haircut'. Have you ever heard the song "Sara Beth" by Rascall Flatts? It talks about a young girl who finds out she has cancer. Her boyfriend who is taking her to prom, shows up at the door having shaved his head in support of her having lost hers already. It's kind of like that. To show support and to have a better understanding of some of what she is going through. Try listening to that song some time. It is a country song if you decide to look it up. Thanks again to everyone for your support!

Good news and humor...

So it's Sunday, August 2nd and Mimi is home! She is doing much better as far as the blistering/rash goes and even better as far as her attitude! She has a much stronger and positive outlook today.....thank you for your prayers. Mom wanted me to let everyone know some good news in the Dilworth family. Emily and Nick are now engaged! Emily is Jim (mom's brother) Dilworth's youngest daughter. So that is something mom is very happy about. She also wanted me to share a little funny about JJ. When she was home a couple of weeks ago JJ was getting dressed and he got really frustrated with his ankle-length socks and told he didn't like them. When she asked why he said "I don't like these socks, I need some long sleeved ones!" So the big laugh now every time we see a pair of socks is 'are they long sleeved or short sleeved?'

Moms friends since elementary Berta and Darlene sent her up a pair of Vera Wang pj's (which are beautiful by the way) and 'short sleeved socks' to match all the colors in the pj's. The cute part is the card told her she may want to wait until the 'rash/spots' go away because the pj's are spotted....she laughed and loves the pj's. Now that she is home, she will probably wear them tonight!

Please continue praying and the cards you send are placed in a scrapbook of get well cards....I have two completed and am working on the third book! Wow! That's a lot of love for a wonderful lady!

Tomorrow mom and dad will go to see Dr. Axelson in his office to discuss the game plan for her future treatments. Kari or I will keep you updated as much as possible. Thanks again for you support and prayers and cards! They are all most appreciated! Take care and remember to send your emails to strengthformimi@yahoo.com.

Back at Bat!

Hi all, it's Kari! I havent blogged in awhile... a couple of reasons... while Mimi was getting her radiation and doing really well, I took a vacation to see my mom in Florida and then when I got home, I had a major influx of business! It's my busy season (im a photographer) so while im in demand I have to run with it!

I do have some uplifting news to bring you tonight... but ill back up a bit first. I was with Nuna on Monday when we took Mimi into see the Oncologist and ill make no bones about it, she was in REALLY bad shape. I was so worried about her and didn't feel like anyone could do anything fast enough to make her feel better. I left the hospital just praying, please God... just bring her comfort and stamina while they work to try to get the right combination of whatever it is to make her feel better.

God provided. I have stayed away and helped a bit with JJ on Tues and Wed. Got up there tonight to find her sitting up in bed and looking at least 70% better than last time I saw her. She was barely responsive on Monday when I left. In talking with her tonight, she doesn't even remember much from Monday or Tuesday... guess that's just as well. But it does give you some insight to how rough it was.

I think the main things I need to bring you up to speed about are first the medical things: On Wed. morning the oncologists told her that there was an additional brain tumor and the original tumor had grown. I think that hit Mimi hard. Almost a slap in the face I imagine... here she has been so willing to give it a go and suffer some to hopefully prolong and heal and then that news... you can imagine im sure.

Well.... then on Thurs. morning they came back and said they talked with the tumor board and they re-examined the films from the MRI and in fact there was NOT a second tumor. The original tumor has grown, but not in the way they thought it had. They actually showed her the films and that brought her a much needed renewed sense of hope.

So, back to the "rash" that has caused her this new set of trouble... the explanation she is being given at this point is that it is due to the effects of the Dilantin (a anti-seizure) medication, they give this to pretty much everyone who has brain surgery from what they tell us... just to be clear, she has never had a seizure. Her diagnosis, for this rash, (per her nurse tonight) is Stephen-Johnsons Syndrome (she at least has all the signs and symptoms of SJS, so they say). It's a mild case of SJS, however, SJS is VERY serious and we are just so thankful that it did not progress further. Her skin is healing but still very painful. To give you a visual idea, from the top of her head down to her abdomen area, it's a blotchy red, blistery, patchy type of rash... very angry looking inflammation. The top of her head is super sore from the radiation still, but not as painful as her ears. One of her ears was just one big blister. Imagine a curling iron burn on your ear ladies... and multiply that. Yeah... ouch. On top of that she has Thrush (yeast infection inside of her mouth) a side effect from the radiation and the rash. The nurse explained tonight that what we see on the outside of her body is just the same as it is inside. The Thrush is healing and they are giving her Nystatin to help that... definitely helping A LOT!

Tonight, I got to spend a few hours with her. She asked me to bring my scissors up with me and cut her hair. I went to cosmetology school right out of high school so I do a tad of that on the side. Anyway... I gave her a haircut! Her hair is falling out in some spots, but it's still full towards the front. After her haircut she got into the shower. Cant use soap or anything on her skin (again imagine a burn), but we rinsed her down and got a new gown and everything on and she looked like a million bucks! Once she was all done, she came and sat out in the chair for a bit (can you see the improvement?!) Huge difference to her being barely responsive on Monday. We had a good chat about everyday stuff and about my pre-teen! Thanks Mimi for the thoughts... I love that about you... you always have such a gentle perspective from both sides to every situation. Im sure you all can relate to that about her.

I left there feeling so happy. I have so much JOY being around her and I am so happy to see her feeling so much better. Now if you will just pray for additional healing, comfort, and peace... I think those three things will get her home quickly! We all know that's where she wants to be!

Thank you everyone for your prayers and thoughts. Tina and I will continue to keep you updated as things change/progress.

Long overdue...

Well, this is Tina and I figured out how to update the blog myself so here goes....it's been a long month. Mimi started radiation on July 9 and had received 11 treatments. She started on Tamedor the pill form of chemotherapy on July 20. Up until Saturday July 25, she seemed to be tolerating the treatment; typical side effects like tired, weakness, some confusion some redness/tenderness on the scar area and of course her hair started thinning.

On Saturday July 25th, she awoke with some red blotches on her face, ears and upper body. Nuna took her to the ER and after a long day there, they felt it was an allergic reaction and gave her some Benadryl and Pepcid AC and told her to follow up with her doctor the following Monday. She got worse on Sunday and began to become more confused; not really sure if it was morning or evening and even more emotional. Carissa and I went over to visit that night and she thought it was Sunday morning. Her blotches had spread and she now had multiple blisters on her face, ears, neck and back and her head was quite red. Nuna planned on calling the doctor for an appointment Monday. They went in on Monday the 27th to see Dr. Trimble at the Oncologist office. They got her in the examination room right away and once the doctor examined her, they sent her over to Allegiance right away to be admitted.

At this point, she is at Allegiance for an undetermined amount of time. She is hurting from the blisters which look like really bad grease burns, and she has thrush which is a bacterial infection in her mouth. She can hardly swallow from the blisters/thrush. Her hair is falling out in clumps and her eyes are infected so they get matted shut easily. She does not want to see anyone because of how she looks. She told me before she would want everyone to remember the last time they saw her; at church, while scrapbooking, going shopping, at a family event, gardening or wherever you may have seen her and remember her that way.

I would ask for prayers for her, not only for healing of this infection but mostly for peace of mind and comfort. She loves all the cards that have been sent and is so grateful for all of her friends, church family and family who support her and Nuna during this time. She wanted everyone to know that the prayers and cards and meals and flowers and thoughts and calls and visits have all meant an awful lot. She wants everyone to know that God does know our hearts and he will take care of us no matter where we are and no matter who we are as long as we know and believe in him.

I would also ask that you pray for Chuck (Nuna) as he is faced with the loss of wife and life partner. They celebrated their 32 anniversary this year and he has been an awesome dad/grandpa for us. He is dedicated to taking care of Mimi the best he knows how. He has been with her the past two days without much of a break. He truly loves her and he wants her to be painfree and comfortable. JJ also needs prayers to get through this as best as an 8 year old can. He too has had many losses in his short life.

Thank you all for your support of our family. We are not strangers to loss and my prayer is that we will only grow stronger for one another each and every day. One day at a time is what is in my bedroom above my mirror and when I arise each morning that is what I see. It reminds me that I cannot look back on yesterday with sorrow, nor look at tomorrow with worry; I can only look at today and do the best I can to make the most of it. God bless each of you and please continue to email or snail mail any messages you want to get to Mimi/Ruthann/Mom.

updates!

First of all thank you so much to all of you who have taken the time to stop by to visit Mimi... it means much more than I think we can express to any of you... It seems to me that Mimi really has turned a corner. By that I mean she seems to be on the up swing of things. She is staying awake and engaged in conversation and out of bed for MUCH longer periods of time and even seems to just radiate a lot more of her "known for" happiness! I couldn't be more thrilled to hear that...

I had a thought the other night about those times when we are so down and out and lose faith and hope and I was disappointed that I hadn't shared this with Mimi sooner... actually I haven't even as of yet but believe me I will! DUH Kari!

Footprints in the Sand

Last night I had a dream. I dreamed I was walking along the beach with the Lord. Across the sky flashed scenes from my life. For each scene, I noticed two sets of footprints in the sand: one belonged to me, the other to the Lord.
After the last scene of my life flashed before me, I looked back at the footprints in the sand. I noticed that at many times along the path of my life, especially at the very lowest and saddest times, there was only one set of footprints.
This really troubled me, so I asked the Lord about it. "Lord, you said once I decided to follow you, You'd walk with me all the way. But I noticed that during the saddest and most troublesome times of my life, there was only one set of footprints. I don't understand why, when I needed You the most, You would leave me."
The Lord replied, "My son, my precious child, I love you and I would never leave you. During your times of suffering, when you could see only one set of footprints, it was then that I carried you."

The last part speaks VOLUMES to me and Mimi's situtation and when she has felt so down over the past few weeks... Not to worry he promises... "it was then that I carried you." Wow... powerful.

Mimi went for her radiation "intake/first appointment" today and I asked Tina for her update just to be sure we got the full story and Mimi didn't forget something and Nuna didn't add some medical words that he coined (wink wink) ;-) Inside joke... Mimi's short term memory isn't fabulous and Nuna isn't the greatest with medical terms... he tends to add them! They sure are silly! Anyway... here is Tina's take on what transpired today, I just copy and pasted it from the email she sent me... figured it sounded perfect so why try to summarize it myself?!

The appointment today started at 10am and by the time we were done it was 12:45pm. It was emotionally tiring for me and mom and dad were exhausted too.

First of all the staff at the Paul Tajeda Oncology/Radiology Center at Allegiance Hospital were wonderful. We met with a nurse, a physician assistant and an MD all during that 2-3/4 time slot along with an oncology therapist who fitted her for a form/mold that has holes in it including for her eyes to wear over her head, neck and shoulders during her radiation treatments. The purpose is to keep the body in the exact position (as precise as it can be) for each of the 30 radiation treatments. It keeps the upper body from moving.

With all the information each of them gave us, it was not hard to become teary eyed knowing all this information was coming in at light speed. The staff was very comforting (especially the RN & PA-go figure) who showed extra care and compassion to mom. They continually asked us if there were questions and kept the focus on mom. After each of them examined her and did a few tests (checking her eyes and strength and feeling…), the discussion of the treatments began. They let her know first of all that she could have her treatment anywhere she chose. The doctor mentioned Sparrow because my cousin Sandy works there and I had mentioned some treatment options and questions that she had me ask about the treatment regimen. She also stated that it was up to mom whether to have the radiation treatment just take the Temodor chemotherapy pills or do nothing. Chuck said he felt good that they shared with mom she had options in her treatment. The Decadron (steroids) she was taking have been decreased to 4mg 4 times a day (instead of 8mg 4 times a day). Mom was glad because her appetite is still quite high. The doctor also mentioned that the steroid could be affecting the sleeping aide she takes (has not been as affective) and the Zololft (anxiety/depression). The Decadron will, of course, be tapered off slowly.

Dr. Soriano shared the pathology report that the GBM was in two pieces; one large section that was able to be removed but the smaller section which was left alone due to location is still there. That is what the gliodial wafer is put in for; to focus on the cancer left there.

Her treatment regimen will be Monday through Friday at a set time each day for 6 weeks. This will mean we will likely need someone willing to do maybe one day each week for six weeks. The option of a van picking her up was mentioned (which is free of charge), however, both Chuck and I agreed that she should not have come to the center for treatments alone.

Side effects are as we probably have all heard before; nausea, vomiting, tender/itchy scalp, thrush, fatigue and of course hair loss. I don’t think any of those are a worry at this point, mom just wants to get things started so she can move on with her life.

It was difficult sitting there thinking ‘can I just walk out of the movie because I don’t like it”; as if this isn’t real but it is. Mimi shared it likes sitting there hearing them talk about someone else and then realizing it’s you they are talking about treatments and hairloss and cancer.


Mom’s stitches come out on 7-7-09 (JJ has a dental appointment that day too so Chuck will take JJ and I will take Mimi, I think…) and then her first treatment is 7-9-09 at 1pm. Then her appointment with Dr. Axelson, Oncologist, will be at 2pm that same day.

So that about sums it up... I will talk with Mimi, Nuna, and Tina about who will be taking Mimi to her appts. everyday... I am thinking that maybe it will be helpful for everyone if we designate a day that each person eill take her. If you are interested in commiting to maybe a day a week please email me and let me know @ strengthformimi@yahoo.com and we will let you know if we need some help. If we don't need you, please don't be offended... I know Nuna would have her there himself everyday... that's just him... but he also won't ask for help (just really doesn't think he needs it and yes he is COMPLETELY capable), so I want to be sure we lighten his load and just make this all go as smoothly as possible! Mimi is very careful to be sure he isn't too overwhelmed... that I think is VERY important to her.

Thank you everyone! Until the next update.... ;-)

Bucket List...

I spent the morning with Mimi and did her usual shower and all the normal stuff. Before her shower though we talked one of our good deep talks and I wanted to share some of that with all of you.

I can only share my perspective on this conversation that we had, but I want to share it with you anyway... I will be the first to admit, I am naieve to the full understanding of what is happening with Mimi and I in no way shape or form know what I am talking about during our converstations like this one... I only can share with what comes from my heart and what my heart is "feeling".

As blunt as this may sound, it's the truth. Right now Mimi feels like she has lost her hope/faith. She shares that she carries guilt because of that loss of faith and hope, yet doesnt know what to do with either. I feel like that's a tradgedy and want to help her find at least some of it. NOT in the sense that she has to go back and find the hope of she will be ok or whatever... but more the sense of purpose for whatever time God has left for her here on Earth. I think she has accepted the fact that she is going to die.... NONE of us know when that's going to happen... none of us know when that's going to happen for each of us for that matter. I think the best way to explain what Mimi has been telling me is that, she has just accepted she is going to die and so whats the best thing she can do just ride it out smoothly. None of us know how this must feel unless you have been in that position. Like I said before I have NO understanding of what she is feeling. I almost see her curling up into "a little ball" metaphorically speaking. A ball that takes her away from it all... not only from the pain/disappointment/hurt that she may be feeling, but it also takes her away from any joy in life.

I asked her today if she had seen the movie Bucket List. If you have... you know that a bucket list is a list of roughly 20-25 things you want to do before you die. I tried to get out of her what some of those things for her would be. Let me tell you that was tough.

1. She wants to redo her kitchen.
2. She wants to get slip covers for her couchs and the new chairs they ordered for the living room!

Sounds very reasonable to me... but I want to get to the root of what does she want to do that gives her purpose... purpose to get out of bed everyday. Something that can take her mind off the few things she is concerned with right now... she seems to almost be in survival mode. Her next thoughts usually are: 1) when can I go lay back down in bed? 2) What is for the next meal (the steriods are keeping her apitite good) 3) When do I have to sit out in the chair next?

First of all... don't get me wrong... I am ALL for her having her healing period and getting the rest she needs. None of us want to push her further than she should... but I see her hurting so badly and so down and in tears way too often and I know she deserves and needs more than that. I feel like its our job as her family to help her get to that place. Maybe it just takes time, maybe we just need to wait for her and her/God's timing... I don't know. I do know that I don't want to push her for my own selfish reasons... I want to and I know I speak for everyone in the family... that we want to do whatever is right for Mimi.

I feel comfortable sharing all of this here because it isn't anything her and I haven't discussed. I have come down on her once or twice and flat out asked her... where did all your hope go? Selfishly I said to her... it's not fair to JJ to have to watch you be in bed all the time... what if God is only giving you a short amount of time left here... is that how you want to spend the last years/months/days... whatever... with him? with any of us?

I know Mimi in her heart of hearts wants and needs more and that's what I am after. I want to help her find that. I know she is making some great progess healing from a surgical standpoint and I am also realisitic to know that her brain is definitely affected by this tumor... sometimes her vision and thoughts are very unclear. Other times... very clear. We don't know how else her brain and emotions are affected by all of that... and then the meds and side effects etc... it gets rather complicated! That im all ok with.

Again, just to recap thoughts here... HOW do you find that hope again? Not false hope, but hope that gives you peace and happiness.

Any thoughts friends? I hope I have conveyed this in a good way, but maybe some of you have been in a similar situtation or maybe just have some thoughts, words of hope, or whatever comes to your mind. Feel free to share...

As always you can email her at: strengthformim@yahoo.com (I promise we are getting each and every email to her)

Just checking in

Nothing major to report. Things are holding steady for Mimi. She has very little pain, so is off nearly all pain meds. This is wonderful because we all know the side effects were rough for her.

She is doing well with her daily schedule and is able to stay awake and out of bed for longer periods of time.

Please as I said in the posts before, feel free to stop by and bring some joy with you! I think that helps the day go along a bit faster for her and keeps her spirits up and gives her other things to think about.

Just give a call before you come by if you would! Thanks so much everyone... try to stay cool!

Bette than I expected!

Well I am sure you could tell in my last blog that I wasn't sure how things would go with Mimi and getting her up and around. Well it was a complete SUCCESS!! We got her showered, lotioned up, dressed, and sat her out in the living room. HUGE step from where she started. She said she felt so much better. My mom put her earrings on and her necklace and she looked like a new woman!

You would not believe how good her incision on her head looks. I think we counted like 12 stitches. I think I mentioned before that they didn't shave her head and really she looked like a million bucks 4 days post surgery.

My mom talked to her about making a schedule of when she going to be doing things throughout the day. Like when she will be setting out in the living room, and when she will have her meals etc. We are hoping this will at least get her on a schedule back to her new form of normalcy! She did end up setting out in the living room for a few hours and chatted with everyone.

So again just to second everything I said yesterday... feel free to drop by if you can bring her some hope and encouragement... that would be lovely! I know she has some incredible friends and loves you all dearly! Thank you everyone.!

Back at it

Hi everyone. Sorry to keep you hanging... I was sick this past weekend and had an open house out of town. We are back in town now and I am blogging from Mimi's computer.

Overall things for Mimi are going well. It seems that the surgery was a success and she is pretty comfortable. She came home from the hospital yesterday. Her stay was extended in the hospital because she had some rough reactions from the pain medications they were giving her.

Tina and Nuna have been caring for her all weekend. Her apatite is good. The steroids are making her hungry. They have her on Decadron a steroid to keep any swelling down.

Now... today's been a little rough. She wants to stay in bed and it seems as if some of her hope has faded... not sure if this is just a yucky side effect from the medication or if it's just that she is tired and trying to recover. It's tough to read her.

We just sat at the table and told her that we are not letting her give up. I think she's down, maybe a bit depressed. My mom is here (from Florida) and is the tough one of the bunch. She told Mimi that she is getting in the shower, because a shower always makes you feel better. She's being a little stubborn about it so we are feeling kind of bad, but know that it will make her feel better. It's a fine line to walk on keeping her up and healthy... we know the side effects are bad if you just lay there and risks of blood clots and pneumonia go up if she does just lay there although we want to not push her to do too much either... I guess I am asking for prayer and any suggestions you may have.

I also think it could be helpful if any of you (her friends from church) and such... feel free to stop by. I think anyone who can come chat with her and keep her engaged in conversation will help... I hope I am right by saying this, but again... it's a fine line. I know lots of you are worried about her and waiting to see if and how you can help and I think at this point... maybe call and mention that you are going to be stopping by and then just do it!

Talk more soon... off to get her a shower.

Just a very quick post

It's late, but I wanted to make sure you all got a bit of an update for today. Mimi had a rough night last night, they were giving her a lot of pain medication and she was reacting adversly to the Morphine. It made her very anxious and upset. Tina went up at about 1am to the hospital and stayed with her thoughout the night.

Same thing happened again this afternoon when they gave her more pain medication, it again sent her into a bit of a nervous state. Rest assure though she is doing well this evening. My mom (Sheri) who lives in Florida and I went up to see her a bit ago around 9pm and she was doing very well. She does have some head pain however seemed comfortable. She is now out of CCU and on a general med floor. I dont know yet when she will be coming home, I think it could be another 2 days though. She still needs to be able to get up and around and she has not been up yet.

Keep your prayers coming she certainly needs them all! Keep following twitter and ill update as I hear anything!

Love to you all!

Today's recap

Well today was overall a good day. Mimi reported to Pre-op at about 5:30 @ Alligence. All the usuals were started. By 7:15 we said our goodbye's to Mimi. At that point they had already given her some medication to relax her so when we said our well wishes she was nice and comfy.

They gave us a pager (similar to the ones you get at a restraunt :-). At about 8:15 we got a page that surgery had begun. We entertianed ourselves in the waiting room. Me, Tina, Angie and Nuna just chatted it up and made jokes to keep the mood light. They told us it would take about 3 hours. By the time 11:15 came around we were starting to get anxious because we hadn't heard anything. The hospital has a guy working who's job was to just keep us informed and updated on changes. That was helpful because it just helped us relax and know what we were waiting on. Around 11:30 she was in recovery they told us and then we headed to lunch in the cafeteria. She stayed in recovery for about an hour and a half.

Dr. Kotecha came out to talk to us... in a nutshell: basically he removed everything he could safely. He placed the gliadel wafers (chemo wafers). Nuna asked him how large the tumor was and he showed us with his hands... we were all a bit surprised with how large it actually was. He mentioned that we would now just wait and let her heal and then she may be eligible to do some radiation once all this is healed.

A friend of mine who is a CCU nurse (we saw her in the cafeteria) said that Mimi would be on her unit. I was thrilled to hear that because I asked Riki to keep her eye on Mimi and I knew she was then in good hands. They let us go in the CCU 2 people at a time to see her. Tina and Nuna went to see her first. She said a couple of silly things to Tina! Angie and I went in and chatted with her.

We were both VERY impressed with how great she looked. We had assumed they would shave the back of her head... not so. She has stitches back there but it looked great. She was a bit silly with us because of the medications, but of course wanted to be sure that everyone else was doing ok. We reassured her that yep we had gotten our coffee and lunch and we were all good to go... leave it to Mimi to be concerned about others after HER brain surgery!

I spoke with the nurse around 6pm because I was feeling the pull to go up there. I was worried about her being alone although I am sure she is in great hands and is getting the rest that she desperately needs. The nurse said that she was doing very well and was eating. Mimi was very hungry after surgery so that made her happy to get something to eat! They said she would go for a repeat MRI this evening just to be sure everything was ok.

Thats about it for today!

Thank you so much everyone for your prayers. I think we all felt very much at peace knowing that people all over the US and even as far as her friends in London were praying for her. There was certainly a peace and what felt like a blanket of prayers going up for her. I don't think it could have gone better. It was great to see her so capable after surgery so soon! WE LOVE YOU MIMI... now onto the healing prayers everyone! Thank you so much!

Well, tomorrow is the big day.

I just got home from Mimi's house. Did the daily emails and chatted with her for a bit. I asked her if there is anything that she wanted me to mention on the blog tonight. She just said, "I am just really at peace with all of this. I don't want anyone to cry for me, because I know no matter what I will be ok." I don't think it gets more humbling than that.

She will be having surgery tomorrow morning at 7:15. She has to arrive at 5:30. Any/all of you, please keep those prayers going all day. We are expecting that she will stay in the hospital for at least 2 days. Obviously I will keep you updated.

You will notice over on the right side of my blog I have added my twitter account. I know a lot of you may not be familiar with twitter, however... basically in a nutshell, it's a program where I can update anytime, directly from my phone. I don't need to log into this blog to get information to you. I will update as any information comes in. You can either log onto this site to read the updates if you are tying to keep up or you can just add me if you already twitter ;-) I don't want to this to be complicated, but my hope is that this way you won't have to wonder all day how things are going. You can keep up minute by minute.

If twitter is just too complicated for you, don't worry... I will update things right here tomorrow night. Check back anytime!

Thanks for making this a great week for Mimi with all of your encouragement! We love and appreciate you all!

Thank you everyone...

You kind words, scriptures, stories and thoughts have been the biggest source of encouragement for Mimi this week. I want you ALL to know how much EACH and EVERY one of those notes have meant to her.

Today was another great day for Mimi. She said she feels very much at peace and she seems very content. We had a great chat this evening about how each one of the emails you send, the content of those emails and the stories that are included bring a light to her because of who it comes from it takes on a whole shape... I hope I am describing that right... it's tough to explain the feelings we talk about. She said it could be something she had heard before, but because you all are sending it, it makes it so much more personal. AWESOME.

Uncle Bill (Nuna's brother) and his wife (Carol) were over to visit Mimi tonight for a bit. Jessi and her kids came out and had dinner with them while Carissa, Danielle, Kayla and I stayed out in the living room and folded laundry! I dusted and windex the living room... I knew it had to be driving Mimi crazy! I must add though, I told her I was super proud of her because I have never seen her just roll with the punches like she has been this past week... she is truly just taking this in stride... I would imagine the waiting game could play on your mind at times. I told her that's so good for her because any other time... that dusting would have been a priority and she would not have been able to rest until it was done. That honestly takes restraint and true self care. SO proud of you Mimi.

Angie, Lindsey and Zach are coming down tomorrow so I know she's really looking forward to having and seeing them. Zach will be getting his quilt from Mimi so I will have to get a picture of the two of them with the quilt Mimi made for Zach... I have yet to see it so I am way excited!

It was rather chaotic tonight at their house with so many people there... I think in the past it would have been a bit overwhelming to Mimi (6+ kids... overwhelming to anyone ;-) two of them were mine) but just to give you a sense of where her heart is right now... she enjoyed every minute of it. She said having them around gives her a reminder of all the things she needs to be here for and also a sense of hope comes with that I am sure.

A huge thing that was sort of an ahh-ha moment for Mimi... Betty B. (who is JJ's chime teacher @ church) sent an amazing email. The most profound visual that she shared in that email: She said she thought of the comparison of the spider web... with mimi in the center of the web and teh web is growing outwards in prayer for Mimi... Yes Mimi, the web keeps getting bigger and bigger for you. I found the BIGGEST web I could find online! Once again... keep those thoughts, scriptures and anything else you see fit for Mimi coming... they mean more than you will ever know.

Last but not least... I promised some pictures from JJ's birthday party. Mimi might have a fit if she knew I shared some pictures of her... should we keep that one a secret? I think she just prefers not to see herself in pictures and would prefer to stay behind the camera! I can TOTALLY relate! Enjoy!!!

Nice relaxing Sunday.

I went over to visit Mimi around 4 today. Nuna said she seemed to be having day that was a little less hope filled. I read her a great email from B. Wahr, who is currently battling breast cancer, Thank You for those thoughts and scripture... she asked me to be sure and write them down.

I made this today and I am going to frame it and take it over to her and set it right next to her bed before the day is over.

Other than that... not much to report today. She said it was just a relaxing Sunday!

How dare they!?! Foreign cars!

Just got home from Mimi and Nuna’s took the emails you all sent today over for her to read. I think this is becoming our little ritual in the evening. Usually when I get there she is in bed after a busy day and I go in and sit by her on the bed and read her the emails and my post from the day before. I could tell she was looking forward to hearing the emails from the day. Thank you everyone.

Mimi had a little list of things she wanted to tell me about today to put on the blog. I think the best part of her day today was that Jim, Nancy, their 3 girls (Nikki, Emily, and Jessica) and all of their kids (Iliana, Lucile, Mac, Sam and Sofia… I definitely spelled someone’s name wrong!) came over for a visit. Her note says this was a real light of her day. She also wrote “I love you all SO much.”

She said that last night she slept really well again. I'm so happy to hear that because you likely know how much more difficult dealing with everything is when you are not sleeping well.

She said Nuna helped her get her shower today. Her balance is bit off so she is being very careful not to fall. Here’s the BIG kicker for the day! The home health nurse for Great Lakes came today. The visit went well and as far as all of that goes they are all set for surgery and the follow up they will be handling afterwards. They took her vitals, did all of the registering, and left some information. They will not see her again until after surgery. All that went very well with the exception of ONE.VERY.IMPORTANT.THING. The nurse showed up in a HONDA. Are you kidding me Great Lakes? Nuna made sure you were chosen because of those Ford nurse cars. When I got to the house this evening that was the first thing Nuna told me about! He said, “would you believe she showed up in a Honda?”! Im sure you are laughing at this point… Nuna however… was NOT. He said if they are going to be driving foreign cars over here, I just can’t stand for that. I told some of you that that’s where we draw the line in Tildenville! American made cars thru and thru!

I was out for dinner tonight and ran into one of Mimi’s friends (Cindy)… Hi Cindy.! I gave Mimi that hug for you! Cindy asked if Mimi was going to be going to church tomorrow, so Mimi and I figured that a lot of you were also wondering or hoping that she would be there. They as a family have decided that tomorrow they will stay home. The Nascar race is here in Brooklyn this weekend so it’s a bit tough (although not impossible) to get to the church. The main reason though, since surgery is right around the corner and Mimi’s balance isn’t the greatest right now, she wants to be sure she doesn’t fall. Also taking the risk of getting a cold or something just wouldn’t be a smart move. Just know that she loves you all and knows that you will be praying and thinking of her tomorrow at church. Again thank you so much for your words, thoughts and encouragement…they REALLY mean a lot to Mimi… all of us for that matter.

Ill keep you posted! Good night all!

Well today was a great day for Mimi

For starters, she went to the cardiologist and got cardiac clearance for the surgery within about 30 minutes… no problem at all. She was very relieved with that being done.

I spoke with her right after her appointment. She sounded very positive today. She said a couple of things to me that I want to share with all of you. First, she metioned that she felt really positive today. She said that she woke up with a positive attitude and a general feeling of calm. She said her vision wasn’t as bad today even…. AWESOME! She shared with me that she just felt that God was telling her that this just isn’t her time to die. She said “I have too much to do and that I want to accomplish and I just feel like God is telling me now is not the time. I just know it‘s not my time.” Wow… those are some profound words. It is certainly encouraging to me because I know it is definitely an answer to prayer. Thank you everyone for those prayers… you are awesome and so is God!

Mimi made it to JJ’s bday party. She said she really enjoyed herself and that most important, JJ had a great time. One of his friends from school that he was unsure if he would make it was there and I guess he just lit up when the friend came… made his day! I did not end up going to take pictures since Mimi was able to make it. Tina and Carissa both took pictures so hopefully I can get a few of them to post here... or maybe one of them will post them here!!! Hmmm girls?!

This morning JJ went into the bedroom and asked Mimi if she would come and have breakfast with him. I hear they had a nice breakfast together. Sounds like a great start to the day for them.

I went over this evening and read all of your emails to Mimi. I can’t tell you all enough how much she loves hearing what you write. We got a good laugh about your swimming story Kristi! I also shared my blog post from yesterday with her… she laughed several times… and of course made a few remarks about how embarrassing that I would take pictures of her house with how dirty it is right now! LOL If you have never been to Mimi’s house… TRUST ME … it’s NOT dirty, messy or anything even near that! I can promise you… pretty much everything is in it’s place and just perfect! Another thing I admire about Mimi… she’s an impeccable housekeeper! However… she also thinks its never just how she would like it to be ;-) always room for improvement in her eyes, even when it looks perfect to all of us... right?!

You know the one thing I forgot to take a picture of yesterday was her Precious Moments. How in the world could I forget those… oh probably because they have always been there and they are just a part of things! She has quite the collection of them and a beautiful display too. I’ll get that picture sometime because really they are such a big part of Mimi!

I konw I said it before... but.... I want to reinterate that you all need to know how much your emails and comments touched Mimi tonight. Keep those coming I really think they are a great source of strength, comfort, and hope for her.

Robin S. shared some really neat thoughts in an email that Mimi asked if I would save… which just for the record I am saving all of the emails, but I thought I would share with all of you what Robin mentioned… Thank you Robin. I know Mimi found these words very touching. I am going to try to put something together to put next to her bed in a frame that she can see and be reminded of these few things often.

Proverbs 3:5-6... "Trust in the Lord with all your heart and lean not on your own understanding; in all your ways acknowledge him, and he will make your paths straight." Trust Him, expect goodness, and watch Him work. Or, as Max Lucado puts it, "Don't fear... God not only read your story, He wrote it."

Last but not least…

I heard this song on the radio today… I’ve always really liked this song, but it spoke really loudly today especially the chorus…

Just a bit to report.

Mimi got home just fine last night and got all settled in. She told me that she was VERY happy to have her own shower, her own shampoo, soap, etc... and of course her own bed. She mentioned that you forget how much you like those things until they aren't there! Angie took JJ to see a movie in the evening so Mimi was home when they got back. I ran over to talk to Mimi about doing this blog. I wanted to get her blessing before I actually let it go "live". She said she was very comfortable with the idea and thought it would be a great way to help with communication. ;-)

I took over about 4 emails that I had gotten today, if you sent yours before 3:30pm, she got it! If it came after 3:30, I will get it over to her sometime tomorrow. gwtvfv c I asked how she slept last night and she said she slept REALLY well. Things for JJ's party are all set for tomorrow he is having a Star Wars cake and taking his friends to go play Laser tag in Tecumseh. Mimi sent Tina to pick up the party favors, and we all know whats an 8 year old party without that?!

Mimi still does not have cardiac clearance for the surgery, however she has an appointment at Michigan Heart tomorrow morning at 10am, so if she comes to your mind around that time please lift her up in prayer! Tina is taking her to the appointment and I may try to go to the party to get some pictures to show Mimi and for his scrapbook of course!

When I was leaving Mimi was tired and was laying down for a nap... good girl! Resting when she should. Angie stayed until about 3 today and then was heading home. I know she did some updating of Mimi's medical records and medication lists to help her stay on top of that stuff. Thanks Angie!! Love you! I like having you close by!

I think that covers things for today...

Last night as I was thinking about some of my favorite things about Mimi and the photographer in me decided that wouldn't it be fun to take some pics of some of things that are "so Mimi"?! Yep, im a dork like that... but blog posts are always much funner when you have pictures to look at right?! It's a crappy gloomy day here in Michigan today, so sorry the pics are a little dark! I think Nuna thought I was crazy taking pictures of the walls! LOL

I realized while I was there today that the most comforting thing to me and my children is that Mimi and Nuna are just there... you always know what to expect. I love that about both of them.

Like how about these pictures that Mimi has of all of us grandkids (and our kids too... their great grandkids) on the wall in the living room? How cool that they get to see us everyday... oh and I wish I still looked I do in my senior picture she has up there! I wonder how she decided not to update them after our Senior Pics were taken.. just curious... I like that one so it's cool with me! I remember when Jessi and I were in the years while we had our kids, Mimi was saying... you guys are making it tough because I can't get the same frames all the time... I think she went through a few different frames for all of them. What will she do in the coming years as the family keeps expanding? Don't worry... no one is expecting... and most definitely NOT ME... but Carissa is a Senior this year so all of us are grown ups now... well except JJ!

Our on the porch/summer living area... she has pictures of all of her neices and nephews kids... again I am sure they find the same comfort that we do in seeing those pictures that she has up there. If you give her an updated picture she is really good about getting them up there! I like that!

How about Mimi's cute little car that I often see her toolin' around town in... I remember when they first got the Mariner (that's the blue one) how many compliments they got and what a good lookin' car it was and how good she looked driving it. I think she really enjoys that car! Oh and just because... if you ever drive a car into their garage you will know that you will have a tennis ball or some type of ball attached to a string hanging from the ceiling ... just let that hit the windshield, that means that you are in as far as you need to be... genius Nuna!

A little off subject here, but here are JJ and Carson (my son) playing computer games this afternoon. Nice tounge Carson.

The waterfall in the yard... if you have known them for a long time you will know that there is a pool underneath all of that! LOL They used to have a pool that I remember spending a lot of time at with Mimi in my "growing up" years. Mimi LOVES the sunshine and always has. Her yard will make anyone jealous because she has that green thumb and the ability to make it look just gorgeous! Here's what it looks like today... as the summer goes on it will take on different looks as plants grow and change... I like that!

Last but not least... For some reason when I was thiking about their house and things I love... these plates came to mind. They have had these plates for as long as I can remember, but they are so Mimi and Nuna... I think they remind me of all the fried fish dinner we have ate on them after Nuna has gone fishing and usually accompanied with corn and rolls! Good family times and memories! Who knew plates would be part of that. I hope she never gets rid of them!

Ok everyone... again thanks for all your thougths, words of encouragement, and prayers! Hope you enjoyed the little photo journey!