Well, this is Tina and I figured out how to update the blog myself so here goes....it's been a long month. Mimi started radiation on July 9 and had received 11 treatments. She started on Tamedor the pill form of chemotherapy on July 20. Up until Saturday July 25, she seemed to be tolerating the treatment; typical side effects like tired, weakness, some confusion some redness/tenderness on the scar area and of course her hair started thinning.
On Saturday July 25th, she awoke with some red blotches on her face, ears and upper body. Nuna took her to the ER and after a long day there, they felt it was an allergic reaction and gave her some Benadryl and Pepcid AC and told her to follow up with her doctor the following Monday. She got worse on Sunday and began to become more confused; not really sure if it was morning or evening and even more emotional. Carissa and I went over to visit that night and she thought it was Sunday morning. Her blotches had spread and she now had multiple blisters on her face, ears, neck and back and her head was quite red. Nuna planned on calling the doctor for an appointment Monday. They went in on Monday the 27th to see Dr. Trimble at the Oncologist office. They got her in the examination room right away and once the doctor examined her, they sent her over to Allegiance right away to be admitted.
At this point, she is at Allegiance for an undetermined amount of time. She is hurting from the blisters which look like really bad grease burns, and she has thrush which is a bacterial infection in her mouth. She can hardly swallow from the blisters/thrush. Her hair is falling out in clumps and her eyes are infected so they get matted shut easily. She does not want to see anyone because of how she looks. She told me before she would want everyone to remember the last time they saw her; at church, while scrapbooking, going shopping, at a family event, gardening or wherever you may have seen her and remember her that way.
I would ask for prayers for her, not only for healing of this infection but mostly for peace of mind and comfort. She loves all the cards that have been sent and is so grateful for all of her friends, church family and family who support her and Nuna during this time. She wanted everyone to know that the prayers and cards and meals and flowers and thoughts and calls and visits have all meant an awful lot. She wants everyone to know that God does know our hearts and he will take care of us no matter where we are and no matter who we are as long as we know and believe in him.
I would also ask that you pray for Chuck (Nuna) as he is faced with the loss of wife and life partner. They celebrated their 32 anniversary this year and he has been an awesome dad/grandpa for us. He is dedicated to taking care of Mimi the best he knows how. He has been with her the past two days without much of a break. He truly loves her and he wants her to be painfree and comfortable. JJ also needs prayers to get through this as best as an 8 year old can. He too has had many losses in his short life.
Thank you all for your support of our family. We are not strangers to loss and my prayer is that we will only grow stronger for one another each and every day. One day at a time is what is in my bedroom above my mirror and when I arise each morning that is what I see. It reminds me that I cannot look back on yesterday with sorrow, nor look at tomorrow with worry; I can only look at today and do the best I can to make the most of it. God bless each of you and please continue to email or snail mail any messages you want to get to Mimi/Ruthann/Mom.
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